Dla refused mumsnet. It's always kids like sam, the HFA / AS kids they refer to.

Dla refused mumsnet Which would be a fair point to make if he had asthma but he doesn't he has chronic lung disease May 11, 2022 · Hi. DS has received mid rate care and low rate mobility DLA since July 2013. He is now 21. DLA wasn't. Pip was phone assessed. Long story short, 2 year old is waiting to see the paediatrician for an autism/developmental delay assessment but won't be seen until september/october. May 19, 2022 · Put in a mandatory reconsideration I am surprised that they refused. He has now phoned them 3 times to ask for a Nov 3, 2010 · I just finished my form tonight for DD, ASD aged 5. I am very worried about my friend and her little family. Now, suddenly, my application for a blue badge was refused, after an assessment. Mar 8, 2014 · I recently made a claim for carers allowance online. Are you not going to appeal the refusal? I saw those articles too. isnt able to have speech therapy as too delayed with undersatnding, so s&l have sent Feb 11, 2023 · Hiya , thanks for this thread , think it’s will come in handy for us waiting for MR decisions , aww bless your son it must of been so terrifying for him 😞…. It was so frightening going in there. Hopefully when this comes to appeal you will get a better result. You have to lay it on really thick,how it is at its worst,how the littlest thing could set something off. At current im still waiting for dwp to respond to the tribunal they have untill 28th aug. my 12 year old suffers from vasculitis (HSP) he got refused DLA back in November, I wasn’t going to fight it but his condition is just getting so much worse he dosnt go a week now without flare ups (his blood vessels leak through Nov 29, 2010 · Ah thanks :) TBH, since filling it in, I have realised that it was so lacking in information, and detail, and that there are certain phrases to use etc. Nov 11, 2009 · Hi there. I belong to a dla group on Facebook (if you look up dla and disability living allowance on Facebook the support groups will come up, some have 40k members) and it seems that those who have included an ehcp have a lot more success at claiming than those who don’t as whole. Jan 8, 2008 · When i applied , they refused, they took a second look (which is done by different assessor) and refused. 5-3 years old), hydrocephalus, cleft lip and palate, glue ear, a squint and hypermobili Dec 10, 2018 · My sometime oxygen dependent baby boy has just had his DLA refused. Aug 16, 2011 · Posted this is SN but no response, so thought I'd try somewhere with more traffic. I was refused first of all but then asked for a reconsideration during which I wrote a long letter giving very specific details of the kind of problems he has and also got the consultant psychiatrist to write in. We applied before a dx and were turned down despite tons of reports and evidence. Nov 8, 2021 · Hello sorry to jump on this post as its from 2021 but I've done a new claim its all new to me I rang for the form on the 29th April 2024 and they recieved it on the 6th June which I got the letter saying they received the forms on the 6th June on the 20 th June its been about nearly 10 week all together but only had one letter off them confirming they have received the forms I've rang up today Oct 17, 2024 · @MrsW12 Some 4 year olds get DLA. We were refused it twice, then appealed. Dec 9, 2022 · Hi. I would definitely apply for DLA (we applied at 3 months). While we were waiting for a decision on the appeal the paediaitrician wrote to them and we were awarded it. That must of done the trick. 6 but the size of a 5 year old and has asd, mld and possible adhd. Whats the chances i get Jun 15, 2022 · He needs to be on reins or in buggy as he gets distressed and runs off. :( Ive sent in everything I have and took 26 extra pages to answer the questions, reports, statements, examples of visual aids and a few extras from NAS site. Can anyone in the know advise me urgently how to help her or what should be done please? Jun 2, 2023 · Hi, my son got diagnosed at 3 with asd he was non verbal up until recently really 7 now nearly 8! But he got middle rate care and low rate mobility he was attending a mainstream but went through ehcp as he was falling really behind and they couldn't meet his needs he now attends a sen school just for autism and he needed a review last year and they awarded him hrc lrm which I didn't expect tbh Jun 13, 2018 · Did you ever get sorted with this? Im going through appeal for my 8yo diagnosed adhd and autism, it seems they arent clued in as to what is normal for children of these ages alot of people i know are refused and win at appeal x Oct 18, 2012 · I've had a blue badge for 6 years. Ive sent it back off but confused as she is awarded until November 17. He's not been able to May 14, 2011 · I applied for dla mainly for the arthritis and included all the other things. Feb 20, 2010 · DLA mobility refused after reconsideration, now been sent to appeal board, got reasons today. Dec 5, 2024 · DLA WAIT TIMES THREAD 58 999 replies zoeybrooks45 · 05/12/2024 08:09 Hello everybody, I have made a new thread please put in your scan date, hopefully we hear some Apr 6, 2019 · Bloody hell just written tons and deleted it - but I'm so desperate for a friendly face :-(Ds turned 16 in Dec and we've been claiming DLA. If the renewal is refused/changed does her award stop/change before or in November. Dec 19, 2019 · I send the whole ehcp with ours. You have a strong chance of the decision being overturned so try not to worry. you got a lower rate of DLA than you expected. full time 1:1at school and still haf to go down the appeal road. We had requested for Mandatory reconsideration and DWP has replied back saying that they are sticking to their original decision. ds was 4 a few months back. Oh Jambuttie. Sorry they refused your claim. I got their reply today. So, the claim won’t be refused purely on the basis DD is 4 if she needs more care/supervision than typical peers the same age. He then nearly died two days later after developing croup so so that was fucking fun week. I've been refused carers allowance and I don't understand why. Nov 26, 2015 · But it's been refused? I am very surprised with that. we have been under paed and speech therapy and portex for past 2 years. Dd is severely autistic, learning diffs and very little speech and language. ds has severe language delay of 20 months,also severe behaviour problems, extremly hyperactive and has alot of autistic tendencies. My 10 year old and 12 year olds are similar in how their asd affects their/our daily lives. He is intelligent, likes trampolining and riding his bike when available. Jan 22, 2024 · Just wondering if anyone has had this happen to them. DLA decision are sometimes really random. Has chronic sleep difficulties severe adhd and struggles everyday. We were just awarded DLA for both - not had the letters yet but had the payment - assuming it's the postal strikes. they refused a family member who has epilepsy and is incontinent and sick after/during a seizure (his seizures are not controlled with medication) because when he’s not had a seizure he is able to do change/wash independently. He i Aug 15, 2019 · Can I suggest you phone the Disability Infomation Advice Line (DIAL) - you can Google the number (they should have a local office). Oct 14, 2010 · DP has arthritis - some debate over whether it's rheumatoid or psoriatic type - and he is in pain and miserable all the time. A lawyer a doctor and s Dec 21, 2005 · Does anyone know what i do knoe? tia Oct 10, 2023 · Does anyone know how successful MR’S are for DLA ? My son got refused so I’m doing a MR one of the reasons was because children don’t see salt until there 3 when I sent in evidence to prove he’s seen them and under there service so I feel like they’ve not even looked at anything he’s been under them since he was 15 months of age! Jun 22, 2005 · Absolutely furious this morning- have been working on part 2 of leighs DLA formsadmittidly since JANUARY!!!! They have written a few times to ' May 18, 2008 · You have refused DLA because you say she needs no help with personal care. Dec 21, 2005 · you are right it is blackmail DLA always tell you that if they re look at it then you might end up wors off, i don't know of anyone this has happened too, i do however know plenty of cases when they reconsider and give a higher award, my DD'S were refused any care or mobility, on the grounds that they needed no more help than a child without a disability, we went on to get high rate care for Aug 16, 2011 · DS2 has ADHD and has been getting DLA since he was about 8. So in my experience I would say a dx helped but I know people who have DLA without. The reasons given are: Jan 22, 2015 · I waited 8 weeks (and 11 weeks for the initial refusal). I have heard of people being refused under smi because their child can do a puzzle 😳 Feb 9, 2024 · My sons school and doctor have both written covering letters which i attached, but it was refused when he was younger and I appealed as my life literally revolves around being within 5 minutes drive to school, constant appointments, medication trials and having below 70% attendance. Anyone else similar that has been refused low rate mobility. We were refused on reconsuderation again and by the time we appealed (some 5 months later) we had a dx and were awarded HRC. May 26, 2015 · In theory DLA is based on need not on dx. Sep 7, 2018 · My 5 year old has learning difficulties (learning age around 2. You often are . It is not unusual for XXXX to wet the bed in the night, which disturbs both our sleep. Maybe I'm just crap at filling in forms. Aug 29, 2010 · DLA is based upon the child's care needs not the diagnosis so it can be awarded even when no diagnosis has been given. I genuinely felt when I was completing that it was basically written about my son and everything applied. Basically it turned out we were denied because I wrote the word run on my form. DS has autism and has frequently refused to walk and abruptly stops walking and dangerously runs on roads. I appealed, sending in a doctor's letter, but was still refused. I have had to leave my job and I’m currently working unpaid to train for a career I can fit around my commitments to him. I'd been procrastinating doing the forms expecting something horrendous like the DLA form. Feb 9, 2010 · We applied for DLA in november, and have eventually heard today from them that we dont qualify! They stated two reasons, one that he doesnt have a disability that means he cant get around (arghhhh he is a baby, he cant move!!!) and secondly that he doesnt have a disability that means he needs help with personal care (totally confused about that Jul 13, 2010 · Hi, i havent posted for a long time so ill give little background to ds. The form's hard work,I know cos we have to reapply now he's nearly Oct 24, 2017 · My DS has been refused high rate mobility on our DLA renewal. Good luck. I have to fully strip the bed, make it up with clean sheets, shower XXXX because she is too sick to do it herself and dress her in clean nightwear. Sep 4, 2017 · We recently applied for DLA in the hope of being able to use some of the money on encouraging him to connect socially through different groups and to pay for taxi's to/from school and for care when we're not home from work. Nov 23, 2016 · Ds has received DLA for 2 years so far mrc lrm. We were turned down first time. He is autistic and needs care at all times. DS2 has ADHD and has been getting DLA since he was about 8. The tribunal can’t consider whether your child's condition has got worse since the decision you’re challenging was made. We also get a lot of support from the 'Aspire' programme, DS is entitled to 80 hours a year one to one support, but we supplement this a bit, it means he can do more in the holidays and I get more time with DC 2 and 3. I had to go through MR twice for DLA for my ASD daughter, and was then only awarded for a year, then two years. You're entitled to claim it and probably Carers Allowance too. Help! 14 replies Delly1977 · 03/02/2020 14:11 Hi all, I have an 8 year old boy who has a dual diagnosis of Downs Syndrome and Oct 28, 2011 · Skip to main content Skip to main navigation Skip to search Skip to talk navigation Advertisement Sep 11, 2024 · refused to over turn on 5th September so waiting for hearing date. I’m really worrying about money. I got a letter this morning saying im not entitled, they havent even written to my rheumatologist who i see for the problem, they wrote to the gp, who i never see for the problem, so how do they know how much i struggle. Jan 26, 2021 · My 12 year old daughter has been refused dla, I completed the mandatory reconsideration and this has come back as refused too. May 5, 2015 · We get DLA for DS1, who is autistic. Dec 22, 2009 · DS2 is 3. Just apply. He was refused on the grounds of any refusal to walk is his own conscious decision rather than from a physical condition leading to paralysis. His mobility has been turned down because the assessor feels that he is able to walk but is making a conscious decision/choice not to. Our latest renewal was refused. Applied for dla for my son who is 6. The letter says: Jun 27, 2023 · We were refused DLA last year and I never went through with the appeal as we as a family had so much on and it was all too stressful as it is. Im hoping we dont get refused. Pip was awarded for 3 years, first time of trying. His renewal has just come back mrc no mobility. Mar 11, 2006 · FWIW, I applied last April for dla for DS who is 8 and has ADHD and dyspraxic tendencies. The only thing that can’t be awarded is low rate mobility. I will be giving them a call tomorrow to find out why, but it has annoyed me. Do I take it to a tribunal? I'm sure after doing some research she should be entitled to extra help but feel like I'm hitting a brick wall. You have to emphasise how much more care your child needs than any other child that age. Wait for the letter to arrive with their bullshit reasons for refusal, and pick apart every last bit of their shit!. Aug 19, 2021 · My son has recently been refused DLA and I have sent a mandatory reconsideration letter. 24 replies jjones · 20/02/2010 18:44 Aug 13, 2023 · Hi all im completely new to mums net ive recently started an appeal for my daughters dla after the MR was refused. Jun 4, 2019 · My daughter has epilepsy she's 8 and iv done her renewal and she's been refused. Scan date 9/8 Recieved 1st letter dated 1/9 Never recieved a text Recieved another letter dated 19/12 asking for more evidence Mar 26, 2013 · Basically my ds had dla from 6 months to age 3 for severe chest problems he was tested for cf and has had over 40 chest infections since birth not inc Mar 28, 2023 · Sorry if I've missed the answer to this online but it only seems to include specifically mandatory reconsideration and appeals. I was told on the phone it's common for parents to exaggerate asthma symptoms. As soon as he could get out of the chair, he did and he was pretty able on crutches but his foot was still under reconstruction with healing grafts that he could only wear a hospital moon boot thing. Mar 29, 2022 · My ds was only 2 when he was awarded dla. just hang in there. . I told the therapist assessor that she was seeing me on a good day, and that my arthritic condition fluctuates, but she took no notice, after a very peremptory test. My friends DD was turned down even though she has serious mobility issues, multiple operations, daily use of oramoph to control the pain, used a wheelchair/crutches - even needed the house adapted as she can't manage stairs. I'm a single mother and I'm honestly gonna struggle to live without t You can appeal against any decision made about the DLA claim for your child. The only evidence we had was a letter from the paediatrician stating he had been referred for Assesment. he will be 3 on valentines ( autism, global delays 18+ mths , pica , high sensory overload, sleep issues, very clumsy, no danger awareness, 0 clear words with meaning he just screams or hums really ) Feb 21, 2023 · DLA is a lottery really, there doesn't seem to be any consistency with how they deal with claims. there are even new things that I didn't realise were part of DS2's problems, I just want to start it again, using the Cereba guide, we are seeing a doctor next week for the first time so hoping we'll have a bit of 'back up'. He has violent outbursts, eats non food items and has had numerous hospitalisations for putting things in nose and ear. Put in PIP claim - I;m his appointee - HF ASC. Feb 3, 2020 · DLA MR refused, next step appeal. Feb 8, 2009 · We get DLA for our ds now 9 who has ASD. He is functioning at about 12 months. Appeal went ahead and i was awarded without even going in to the room! all in all it took 11 and a half months. Can anybody shed any light? Aug 3, 2007 · jambuttie, does your ds have a gdd diagnosis, my ds4 has diagnosis of gdd with hypermobile joints, but in my opinion ticks lots of boxes for dyspraxia, we have just been awarded mid rate dla for the 2nd time, lost his mobility this time but he isnt 5 till next feb, i guess i am much luckier than some, defo go all the way to appeal though hun, and get as much back up as you can, inundate them Mar 5, 2009 · I went to Wilfs DLA appeal today, they had reduced his highest rate care to middle rate. and i finally got money a year after application. Jul 28, 2017 · Hi I've recently received a renewal pack for my daughter's DLA. appealed as refused on revonsideration whivh took another 10 weeks. It's always kids like sam, the HFA / AS kids they refer to. Aug 29, 2006 · Sorry to hear you got refused dla for dt1 and dt2 got awarded low rate only Jambuttie. He has no awareness of danger road saftey impulsive tendencies. So many claims are turned down because they are looking for very specific wording/ information so it can really help to get some support when completing the form. We were waiting an autism diagnosis but applied for the dla early so the preschool could access extra funding for 1-1. Some of the most common reasons are if: you didn’t get awarded DLA. then got award. Nov 2, 2020 · NC. I hadnt mentioned that anywhere, ds's TA had a daughter in the lessons (lessons lasted 3 weeks before ds refused to go anymore) Oct 24, 2021 · Not from my experience. Aug 4, 2007 · Private messages My feed My lists Premium Dark mode Off Feb 2, 2015 · He was initially given high level dla before we had a firm diagnosis, they have continued the dla at high level but have knocked three years off the time running on the award. When he was 3 I applied to get the m Sep 21, 2024 · Sorry i am not an assessor but i know that letter - i got dla for one of my DS after a bad road accident which left him wheelchair bound at first. Jun 3, 2010 · DLA didnt tell me they would be contacting the school and i didnt see a copy of what school said, but during Tribunal they mentioned Taewonkdo lessons that i had enrolled ds in. Jul 24, 2009 · We get middle rate care for DS1, I haven't applied for mobility, although I am considering it now. Got refused dla few weeks back have asked for a reconsideration and sent school report in medical report which states his medication ect. nvyb nwi ummu kelbszj lkp hhqaoa ufeqom wlyb ledjb xsnked